Site Registry Coordinator

DOE-STD-1187-2005

be obtained from the medical record.

2.2. Site Registry Coordinator: A Registry coordinator must be identified at each

DOE site to serve as the point of contact between the site and the Beryllium

Registry Data Center at Oak Ridge. The Registry coordinator is responsible for

coordinating activities at the site related to data collection, submitting data to the

Data Center in a timely manner, receiving inquiries from the Data Center,

contacting appropriate site personnel to resolve data management and collection

issues, and correcting errors. It is expected that the Registry coordinator will

interact with a variety of individuals at the site such as line managers, computer

support personnel, industrial hygienists, and site medical clinic personnel.

2.3. Data Submission:

2.3.1. Each site should define the best file structure and transmitting protocol

for their site, in coordination with the Beryllium Registry Data Center.

All data must be submitted as electronic files. The Data Center is

flexible as to file type and will work with each site individually to

accommodate various computer systems.

2.3.2. All sites should have had, and been using, fully functioning data

submission procedures no later than the 10 CFR 850 implementation

date of January 7, 2002. Initial submissions to the Registry should

have included all available data for all current beryllium-associated

workers at that time.

2.3.3. Data must be submitted semi-annually to the Beryllium Registry Data

Center at the Oak Ridge Institute for Science and Education (ORISE).

The reporting periods begin on January 1 and July 1. Data should be

submitted within 30 days of the reporting period to:

The Beryllium Registry Data Center

ORISE Center for Epidemiologic Research

P.O. Box 117

Oak Ridge, TN 37831-0117

ORISE data coordinator: Phil Wallace

Phone:

(865) 576-3142

Fax:

(865) 576-9557

Email:

wallacep@orau.gov

2.4. Worker Confidentiality Protection: As indicated in the Beryllium Rule, the

purpose of the Beryllium Registry is to help DOE in its mission to protect

worker health. This can only be done if we know what factors place our

workers at risk for developing sensitization or chronic beryllium disease so that

these risks can be mitigated where possible. The Beryllium Registry contains